Welcome

Lyme Disease is the number one tick borne illness in the world, and is the fastest growing vector born illness.

Lyme Disease is usually  transmitted through the bite of a tick, and can cause mild, moderate or severe symptoms, and if left untreated can be fatal.

Please explore these pages, & contact us if you need any information, or would like to join the Lyme Disease Association of Australia.

The First book on Lyme Disease in Australia is published!!!!!!  Lyme Disease in Australia. Fundamentals of an emerging epidemic by LDAA Member Dr Nicola McFadzean is a vital new resource for  Australian Lyme patients and doctors.  You can get more information about the book and how to order here www.lymedownunder.com

The LDAA is pleased to present the findings of our 2011-2012 survey into the patient experience of Lyme Disease sufferers in Australia.  You are able to read the report here

Join in the new research study through the University of Sydney and the Karl McManus Foundation into what pathogens are associated with Australian Lyme Disease.  For more information see the flyer below or contact Dr Ann Mitrovic by phone (02) 9351 3217 or email: ann.mitrovic@sydney.edu.au

16 year old Ally Durr is an amazing young woman, who in December will trek the 650km Alpine Walking Track on her own (it will take her 6 weeks), to raise awareness for Lyme Disease and funds for the Lyme Disease Association of Australia and the Karl McManus Foundation – Go ALLY! To follow her solo trek , to offer support, encouragement and sponsorship, please check out her website here www.allydurr.com

On Friday the 23rd of November at 4pm there will be a protest at the QLD Health Building (147-163 Charlotte St, Brisbane), calling for better testing and treatment of early and chronic Lyme Disease, as well as increased funding for research, better testing, and adequate training for medical professionals.  Come along and join in the protest – bring your friends and family – wear Lime Green to support this good cause.

To register –

http://www.facebook.com/events/290421847728904/

or call Rachel on 0434 267 237

or email Karen  kazsmithy@live.com.au

you can download a copy of the poster here so that you can print it out to give to friends, family & put up in your local medical centre  – QLD Lyme Protest Poster Oct 12

 

One of our very creative, clever and kind members has made adorable knitted Cuddle Bears – we are pleased to be able to offer these as a gift for any child diagnosed with Lyme Disease (to cuddle up to for blood tests and visits to the doctor), and for sale to members of the public.  For children diagnosed with Lyme Disease we ask for a donation to cover the postage ($7.50).  To purchase a Lyme Cuddle Teddy the cost is $10 plus postage ($17.50).  The Teddy’s come in a variety of colours and are gorgeous.  To order, please email us for details (info@lymedisease.org.au).

The Lyme Disease Protest in Sydney on the 14th of Sydney went very well, with around 150 people attending.  As a result of the protest, patient advocates were invited to meet with NSW Department of Health representatives, who agreed to move forward in negotiations with the Lyme Disease Community (which is a HUGE turning point for Lyme patients in Australia).  A copy of the minutes of that meeting are available here (page 1) and here (page 2).

The second exceptional outcome was that after a year of putting in Freedom of Information requests that mysteriously kept getting lost in the post, the Lyme Disease Association of Australia’s application to have all information given to us around how NSW Health conducted their review into Lyme Disease in April 2011 has finally been accepted – this will mean we can discover for the first time WHO was responsible for this review (we currently believe that no current researchers in Lyme Disease and we know that no representatives of the Lyme Disease community were invited to attend – and in fact were not even advised of the review at all, so were unable to make a submission), and secondly we will be able to discover WHAT evidence they based their review on (and what evidence they chose to ignore).

You can see photos from the protest here